For Youth, By Youth: A Digital Care Companion to Enhance the Pediatric-Adult Transition 

For Youth, By Youth: A Digital Care Companion to Enhance the Pediatric-Adult Transition 

Pediatric heart disease patients often face challenges as they move from youth to adult care. TRANSFORM HF member Dr. Sahr Wali and youth patient champion Amelia Mahlenbrei Watford are working to change that. The pair has been awarded a Pride in Patient Engagement in Research (PiPER) program grant to advance this work, with a focus on Chameleon – the team’s mobile phone-based educational care companion that offers personalized medication tracking, regular health check-ins, and lifestyle reminders. The goal? To empower youth, improve care continuity, and make transitions smoother and more successful.

MasterClass for Patient Partners Engaging in Cardiovascular Research

MasterClass for Patient Partners Engaging in Cardiovascular Research

TRANSFORM HF is proud to work with the CHF Alliance and HeartLife Foundation to offer a free MasterClass for patient partners on engaging in research.

This MasterClass has been designed to train those with lived experience of cardiovascular conditions to be active members of research teams while building a national community of engaged patient partners.

Engaging People with Lived Experience in Heart Failure Research

Engaging People with Lived Experience in Heart Failure Research

In recognition of the importance of increasing patient agency in heart failure research, TRANSFORM HF hosted a workshop to introduce and contextualize principles and practices to engage people with lived experience in research.

This recorded workshop will help viewers understand the history and evidence for patient engagement and partnership in research, learn principles and best practices for high-quality engagement, and explore applications in heart failure research in our current Canadian research landscape.