For Youth, By Youth: A Digital Care Companion to Enhance the Pediatric-Adult Transition
Pediatric heart disease patients often face challenges as they move from youth to adult care. TRANSFORM HF member Dr. Sahr Wali and youth patient champion Amelia Mahlenbrei Watford are working to change that. The pair has been awarded a Pride in Patient Engagement in Research (PiPER) program grant to advance this work, with a focus on Chameleon – the team’s mobile phone-based educational care companion that offers personalized medication tracking, regular health check-ins, and lifestyle reminders. The goal? To empower youth, improve care continuity, and make transitions smoother and more successful.
